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Organizations Medical Research Lupus Research Alliance Inc.

Lupus Research Alliance Inc.

Fiscal year ending 2022. Filed on September 15, 2023.

270 Madison Avenue Suite 300
Tower 650
New York, New York 10016

Lupus Research Alliance Inc. (EIN: 58-2492929) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2022 IRS Form 990 filing, Lupus Research Alliance Inc., a 501(c)(3) charitable organization, reported compensation for 11 out of 63 total employees. Among the employees shown here, the average compensation is $280,557. The highest compensated employee at Lupus Research Alliance Inc. is Kenneth M Farber with fiscal year 2022 compensation of $469,159. Lupus Research Alliance Inc. changed its name from Lupus Research Alliance Inc. F/K/a Alliance for Lupus Research Inc. in 2017.

Revenue, expenses, and employee compensation

Revenue

$22,699,491

Expenses

$32,373,925

Employee compensation

$7,532,779
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Kenneth M Farber
CEO and President (Past)
$469,159
$406,576 No related comp$62,583
Albert Roy
President and Chief Executive Officer
$420,326
$336,203 No related comp$84,123
Teodora Staeva
Vice President and Chief Scientific Officer
$388,141
$319,513 No related comp$68,628
Andrea O'Neill
Vice President and Chief Development Officer
$329,667
$278,423 No related comp$51,244
Debra Rose
Vice President and Chief Finance Officer
$275,445
$226,160 No related comp$49,285
Penelope Mitchell
Vice President, Communications
$225,497
$186,455 No related comp$39,042
Dorey Neilinger
Senior Director of Philanthropy
$218,122
$177,429 No related comp$40,693
Jonathan Marks
Director of Corporate Development
$199,512
$148,131 No related comp$51,381
Devon Kelly
Lupus Nexus Director
$197,211
$159,801 No related comp$37,410
Diane Gross
National Director of Advocacy
$192,135
$145,081 No related comp$47,054
Ebony Scott
Health Equity Director
$170,915
$136,879 No related comp$34,036

Benchmark Employee Compensation

Non-Employee Board Members

Anna Fisch
Director
Bishop Rudy V Carlton
Director
Brenda Blackmon
Secretary
Daniel J Wallace
Director
Daniel Lavecchia
Director
David Kies
Director
Ira Akselrad
Co-Chair
Jennie Descherer
Director
Joe Germanotta
Director
Joseph Mauriello
Treasurer
Julius Williams
Director
Katey Driscoll
Director

Contractors

Deloitte Consulting LLP
Lupus Nexus Planning Consultant
$414,344
Convergency LLC
FDA Consultant
$300,000
EG&A Cirp Dba Mcs Healthcare PR
Public Relations Consultant
$236,096
Nkechinyere Anyadike
Lupus Nexus Consultant
$146,240
Schaner Lubitz Pllc
Life Sciences Attorney
$118,588

Mission Statement

PUTTING PEOPLE WITH LUPUS AT THE CENTER OF ALL WE DO, THE LUPUS RESEARCH ALLIANCE DRIVES THE DISCOVERY & DEVELOPMENT OF NEXT GENERATION LUPUS DIAGNOSTICS AND CURATIVE TREATMENTS THROUGH INNOVATIVE RESEARCH & COLLABORATIONS.

Revisions to this organization profile

September 11, 2025:
2024 Lupus Research Alliance Inc. 990 filed
September 20, 2024:
2023 Lupus Research Alliance Inc. 990 filed
September 15, 2023:
2022 Lupus Research Alliance Inc. 990 filed

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