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Organizations National Organization for Rare Disorders Inc.

National Organization for Rare Disorders Inc.

Fiscal year ending 2018. Filed on November 12, 2019.

1900 Crown Colony Dr 3rd Fl No 310
Quincy, Massachusetts 02169

National Organization for Rare Disorders Inc. (EIN: 13-3223946) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2018 IRS Form 990 filing, National Organization for Rare Disorders Inc., a 501(c)(3) charitable organization, reported compensation for 8 out of 84 total employees. Among the employees shown here, the average compensation is $221,241. The highest compensated employee at National Organization for Rare Disorders Inc. is Peter Saltonstall with fiscal year 2018 compensation of $426,052.

Revenue, expenses, and employee compensation

Revenue

$47,123,099

Expenses

$34,074,818

Employee compensation

$5,580,030
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Peter Saltonstall
President and Chief Executive Officer
$426,052
$385,121 No related comp$40,931
Pamela Gavin
Chief Operating Officer
$319,081
$296,720 No related comp$22,361
Alexa Moore
Vice President, Development
$239,401
$205,192 No related comp$34,209
Tim Ehrhard
Information Technology Director
$197,615
$164,800 No related comp$32,815
Vincent J Murphy Jr
Vice President, Finance
$159,536
$128,606 No related comp$30,930
James Berg
Principal Software Architect
$155,182
$124,057 No related comp$31,125
Mark Lloyd
Senior Software Architect
$145,036
$117,734 No related comp$27,302
Mary Dunkle
Vice President of Educational Initiati
$128,024
$121,014 No related comp$7,010

Benchmark Employee Compensation

Non-Employee Board Members

Charles A Mohan Jr
Director
Frederick Barr, M.D.
Director
Jim Palma
Director
Jonathan Haines, Ph.D.
Director
Kathleen Weis
Director
Marshall L Summar, M.D.
Chair
Preston White Campbell III, M.D.
Director
Roger Ziegler
Treasurer
Ronald J Bartek
Director
Sarah Krug
Director
Sheldon M Schuster, Ph.D.
Vice Chair
Steven Grossman
Secretary

Mission Statement

NORD STRIVES TO IMPROVE THE HEALTH AND WELL-BEING OF PEOPLE WITH RARE DISEASES BY DRIVING ADVANCES IN CARE, RESEARCH, AND POLICY.

Revisions to this organization profile

June 9, 2025:
2024 National Organization for Rare Disorders Inc. 990 filed
May 31, 2024:
2023 National Organization for Rare Disorders Inc. 990 filed
May 11, 2023:
2022 National Organization for Rare Disorders Inc. 990 filed

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