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Organizations Human Services The Parent Project for Muscular Dystrophy Research Inc.

The Parent Project for Muscular Dystrophy Research Inc.

Fiscal year ending 2020. Filed on November 15, 2021.

1012 14th Str NW No 500
Research Sponsored Programs
Washington, District of Columbia 20005

The Parent Project for Muscular Dystrophy Research Inc. (EIN: 31-1405490) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2020 IRS Form 990 filing, The Parent Project for Muscular Dystrophy Research Inc., a 501(c)(3) charitable organization, reported compensation for 10 out of 24 total employees. Among the employees shown here, the average compensation is $161,381. The highest compensated employee at The Parent Project for Muscular Dystrophy Research Inc. is Patricia A Furlong with fiscal year 2020 compensation of $241,434.

Revenue, expenses, and employee compensation

Revenue

$9,559,090

Expenses

$7,865,638

Employee compensation

$2,739,629
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Patricia A Furlong
Founding CEO and President
$241,434
$230,950 No related comp$10,484
Kimberly Galberaith
Creative Director, Projects and Events
$211,180
$173,400 No related comp$37,780
Kaylan Moitoso
Chief Business Officer
$182,016
$172,658 No related comp$9,358
Ryan Fischer
Chief Advocacy Officer
$179,502
$165,823 No related comp$13,679
Kelly J Dougherty
Former SR Vp-Finance and Administration
$157,957
$148,604 No related comp$9,353
Rachel Schrader
Vice President, Clinical CARE and ED
$145,765
$132,942 No related comp$12,823
Ann Martin
Vice President, COMM RES and GEN, Duchenne REG
$133,191
$126,064 No related comp$7,127
Eric Camino
Vice President, Research and Clinical Innovation
$131,653
$111,415 No related comp$20,238
Erin Dresnick
Development Director
$118,849
$110,308 No related comp$8,541
William P Nolan
Senior Vice President, Communications
$112,263
$106,667 No related comp$5,596

Benchmark Employee Compensation

Non-Employee Board Members

Anessa Fehsenfeld
President
Beth White
Board Member
Christopher Jones
Board Member
Colin Rensch
Board Member
David Hofstein
Board Member
Donna Saccamanno
Board Member
Jeffrey Bigelow
Board Member
Joanna Johnson
Secretary
John Killian
Treasurer
Jonathan Finder
Board Member
Lance Hester
Board Member
Linda Cripe
Board Member

Contractors

Prometheus Research
Database/IT
$107,700
Oxford Health Plans
Health Insurance
$106,146

Mission Statement

THE PARENT PROJECT MUSCULAR DYSTROPHY (PPMD) FIGHTS TO END DUCHENNE. WE ACCELERATE RESEARCH, RAISE OUR VOICES TO IMPACT POLICY, DEMAND OPTIMAL CARE FOR EVERY SINGLE FAMILY, AND STRIVE TO ENSURE ACCESS TO APPROVED THERAPIES.

Revisions to this organization profile

August 21, 2025:
2024 The Parent Project for Muscular Dystrophy Research Inc. 990 filed
July 24, 2024:
2023 The Parent Project for Muscular Dystrophy Research Inc. 990 filed
August 7, 2023:
2022 The Parent Project for Muscular Dystrophy Research Inc. 990 filed

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