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Organizations Human Services The Parent Project for Muscular Dystrophy Research Inc.

The Parent Project for Muscular Dystrophy Research Inc.

Fiscal year ending 2022. Filed on August 7, 2023.

1012 14th Street NW 500
Bldg
Washington, District of Columbia 20005

The Parent Project for Muscular Dystrophy Research Inc. (EIN: 31-1405490) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2022 IRS Form 990 filing, The Parent Project for Muscular Dystrophy Research Inc., a 501(c)(3) charitable organization, reported compensation for 5 out of 25 total employees. Among the employees shown here, the average compensation is $205,610. The highest compensated employee at The Parent Project for Muscular Dystrophy Research Inc. is Patricia A Furlong with fiscal year 2022 compensation of $304,898.

Revenue, expenses, and employee compensation

Revenue

$10,753,014

Expenses

$11,037,641

Employee compensation

$3,241,316
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Patricia A Furlong
President and Chief Executive Officer
$304,898
$292,250 No related comp$12,648
Ryan Fischer
Chief Advocacy Officer
$201,706
$187,206 No related comp$14,500
Kaylan Moitoso
Chief Business Officer
$194,043
$184,600 No related comp$9,443
Rachel Schrader
Vice President Clinical CARE and Education
$168,404
$153,280 No related comp$15,124
Ann Martin
Vice President, COMM Research and Genetic Services
$158,998
$151,910 No related comp$7,088

Benchmark Employee Compensation

Non-Employee Board Members

Anessa Fehsenfeld
Board Chair
Beth White
Board Member
Christopher Jones
Board Member
Colin Rensch
Board Member
David N Hofstein
Executive Oversight Chair
Deanne Friar
Secretary
Gretchen Egner
Vice Chair
Jeff Bigelow
Board Member
Lance Hester
Treasurer
Linda Cripe
Board Member
Rasha Alnaibari
Board Member
Richard Klein
Board Member

Contractors

The Phoenician Resort
Annual Conference Venue
$968,428
Somalogic Inc.
Biomarker Initiative
$472,550
Faegre Drinker Biddie & Reath LLP
Regulatory Consulting Fees
$260,564
All Colors LLC
Supplies Printing and Storage
$242,611
Prometheus Research LLC
Database/IT
$220,409

Mission Statement

THE PARENT PROJECT MUSCULAR DYSTROPHY (PPMD) FIGHTS TO END DUCHENNE. WE ACCELERATE RESEARCH, RAISE OUR VOICES TO IMPACT POLICY, DEMAND OPTIMAL CARE FOR EVERY SINGLE FAMILY, AND STRIVE TO ENSURE ACCESS TO APPROVED THERAPIES.

Revisions to this organization profile

August 21, 2025:
2024 The Parent Project for Muscular Dystrophy Research Inc. 990 filed
July 24, 2024:
2023 The Parent Project for Muscular Dystrophy Research Inc. 990 filed
August 7, 2023:
2022 The Parent Project for Muscular Dystrophy Research Inc. 990 filed

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