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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Employees Families of Spinal Muscular Atrophy Dba Cure Sma Jill Jarecki

Jill Jarecki

Key employee

Chief Scientific Officer at Families of Spinal Muscular Atrophy Dba Cure Sma

Fiscal year ended June 30, 2022. Published on January 25, 2026.

$178,613
2022

Total compensation

Jill Jarecki has been listed as an employee of Families of Spinal Muscular Atrophy Dba Cure Sma in Form 990 filings since fiscal year 2017. Total compensation for Jill Jarecki has increased by 3.7% from 2017 to 2022.

Annual compensation details

$178,613
-28%
Chief Scientific Officer
2022
$170k org
60 hrs/wk
$9k other
--
$247,905
+18.8%
Chief Scientific Officer
2021
$238k org
60 hrs/wk
$11k other
--

Total compensation by year

Compare the compensation of Jill Jarecki to:

2022

Other employees at Families of Spinal Muscular Atrophy Dba Cure Sma

Kenneth Hobby
President
$330,026
$312,639 from orgNo related comp$17,387 other
Mary Schroth
Chief Medical Officer
$277,318
$259,537 from orgNo related comp$17,781 other
Marline Pagan
Vice President, Finance
$192,528
$168,795 from orgNo related comp$23,733 other
Colleen McCarthy O'Toole
Vice President Family Support
$172,852
$149,198 from orgNo related comp$23,654 other
Pamela Swenk
Chief of Staff Officer
$167,566
$149,272 from orgNo related comp$18,294 other
Erin Oganesian
Vice President, Development
$152,185
$135,108 from orgNo related comp$17,077 other
Maynard Friesz
Vice President Policy and A
$131,582
$115,409 from orgNo related comp$16,173 other
Amber Ewert Snyder
SR Director Database MGMT
$111,944
$102,227 from orgNo related comp$9,717 other
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Revisions to this profile

January 25, 2026:
2022 Families of Spinal Muscular Atrophy Dba Cure Sma 990 published
January 24, 2026:
2021 Families of Spinal Muscular Atrophy Dba Cure Sma 990 published
January 24, 2026:
2020 Families of Spinal Muscular Atrophy Dba Cure Sma 990 published

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$208,613
+2.4%
Chief Scientific Officer
2020
$200k org
60 hrs/wk
$10k other
--
$203,793
+5.5%
Chief Scientific Officer
2019
$195k org
60 hrs/wk
$10k other
--
$193,171
+12.1%
Chief Scientific Officer
2018
$186k org
60 hrs/wk
$8k other
--
$172,317
Research Director
2017
$172k org
50 hrs/wk
$1k other
--