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Organizations National Organization for Rare Disorders Inc.

National Organization for Rare Disorders Inc.

Fiscal year ending 2019. Filed on August 4, 2020.

1900 Crown Colony Dr 3rd Fl No
Quincy, Massachusetts 02169

National Organization for Rare Disorders Inc. (EIN: 13-3223946) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2019 IRS Form 990 filing, National Organization for Rare Disorders Inc., a 501(c)(3) charitable organization, reported compensation for 8 out of 91 total employees. Among the employees shown here, the average compensation is $230,588. The highest compensated employee at National Organization for Rare Disorders Inc. is Peter Saltonstall with fiscal year 2019 compensation of $424,122.

Revenue, expenses, and employee compensation

Revenue

$52,413,377

Expenses

$41,789,694

Employee compensation

$6,630,675
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Peter Saltonstall
President and Chief Executive Officer
$424,122
$399,286 No related comp$24,836
Pamela Gavin
Chief Operating Officer
$336,764
$314,643 No related comp$22,121
Alexa Moore
Vice President, Development
$237,167
$204,227 No related comp$32,940
Rachel Sher
Vice President Policy and Regulatory Affairs
$202,211
$193,229 No related comp$8,982
Tim Ehrhard
Information Technology Director
$188,898
$157,641 No related comp$31,257
James Berg
Principal Software Architect
$158,557
$121,494 No related comp$37,063
Vincent J Murphy Jr
Vice President, Finance
$152,222
$122,652 No related comp$29,570
Jill Pollander
Patient Services Director
$144,762
$123,058 No related comp$21,704

Benchmark Employee Compensation

Non-Employee Board Members

Frederick Barr, M.D.
Director
Jim Palma
Director
Kay Holcombe
Director
Marshall L Summar, M.D.
Chair
Mike Porath
Director
Neil Horikoshi
Director
Philip Pearl
Director
Ronald J Bartek
Director
Shafali Jeste
Director
Sheldon M Schuster, Ph.D.
Vice Chair
Steven Grossman
Secretary
Susan Berry
Director

Contractors

Cloud for Good LLC
IT Consultant
$136,111

Mission Statement

NORD STRIVES TO IMPROVE THE HEALTH AND WELL-BEING OF PEOPLE WITH RARE DISEASES BY DRIVING ADVANCES IN CARE, RESEARCH, AND POLICY.

Revisions to this organization profile

June 9, 2025:
2024 National Organization for Rare Disorders Inc. 990 filed
May 31, 2024:
2023 National Organization for Rare Disorders Inc. 990 filed
May 11, 2023:
2022 National Organization for Rare Disorders Inc. 990 filed

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