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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Employees National Organization for Rare Disorders Inc. Rachel Sher

Rachel Sher

Highest compensated employee

Vice President Policy and Regulatory Affairs at National Organization for Rare Disorders Inc.

Fiscal year ended December 31, 2021. Published on January 25, 2026.

$246,572
2021

Total compensation

Rachel Sher has been listed as an employee of National Organization for Rare Disorders Inc. in Form 990 filings since fiscal year 2019. Total compensation for Rachel Sher has increased by 21.9% from 2019 to 2021.

Annual compensation details

$246,572
+3.6%
Vice President Policy and Regulatory Affairs
2021
$226k org
35 hrs/wk
$21k other
--
$238,083
+17.7%
Vice President Policy and Regulatory Affairs
2020
$226k org
35 hrs/wk
$13k other
--

Total compensation by year

Compare the compensation of Rachel Sher to:

2021

Other employees at National Organization for Rare Disorders Inc.

Peter Saltonstall
President and Chief Executive Officer
$488,947
$452,672 from orgNo related comp$36,275 other
Pamela Gavin
Chief Operating Officer
$365,824
$345,320 from orgNo related comp$20,504 other
Prashant Goel
Vice President, Information Technology
$273,629
$258,821 from orgNo related comp$14,808 other
Alexa Moore
Vice President, Development
$263,124
$218,063 from orgNo related comp$45,061 other
Edward Neilan
Chief Medical and Scientific Officer
$210,393
$180,810 from orgNo related comp$29,583 other
Vincent J Murphy Jr
Vice President, Finance
$171,205
$129,355 from orgNo related comp$41,850 other
Jill Pollander
Vice President, Patient Services
$168,965
$139,242 from orgNo related comp$29,723 other
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Revisions to this profile

January 25, 2026:
2021 National Organization for Rare Disorders Inc. 990 published
January 24, 2026:
2020 National Organization for Rare Disorders Inc. 990 published
January 24, 2026:
2019 National Organization for Rare Disorders Inc. 990 published

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$202,211
Vice President Policy and Regulatory Affairs
2019
$194k org
35 hrs/wk
$9k other
--

Other people named Rachel Sher

2021
Board Member
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Lynn Sage Foundation
$0
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Rachel Sher
Lynn Sage Breast Cancer Foundation
$0
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Alliance for a Stronger Fda Inc.
$0
Employee
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Friends of Bennett Day School
$0
Employee
Rachel H Kangisser Sher
The Rachel Kangisser Sher and Philip Sher Charitable Trust
$0