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Organizations National Organization for Rare Disorders Inc.

National Organization for Rare Disorders Inc.

Fiscal year ending 2021. Filed on September 28, 2022.

1900 Crown Colony Dr 3rd Fl 310
Research Administration Research Su
Quincy, Massachusetts 02169

National Organization for Rare Disorders Inc. (EIN: 13-3223946) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2021 IRS Form 990 filing, National Organization for Rare Disorders Inc., a 501(c)(3) charitable organization, reported compensation for 8 out of 111 total employees. Among the employees shown here, the average compensation is $273,582. The highest compensated employee at National Organization for Rare Disorders Inc. is Peter Saltonstall with fiscal year 2021 compensation of $488,947.

Revenue, expenses, and employee compensation

Revenue

$43,188,172

Expenses

$57,720,517

Employee compensation

$10,006,667
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Peter Saltonstall
President and Chief Executive Officer
$488,947
$452,672 No related comp$36,275
Pamela Gavin
Chief Operating Officer
$365,824
$345,320 No related comp$20,504
Prashant Goel
Vice President, Information Technology
$273,629
$258,821 No related comp$14,808
Alexa Moore
Vice President, Development
$263,124
$218,063 No related comp$45,061
Rachel Sher
Vice President Policy and Regulatory Affairs
$246,572
$225,960 No related comp$20,612
Edward Neilan
Chief Medical and Scientific Officer
$210,393
$180,810 No related comp$29,583
Vincent J Murphy Jr
Vice President, Finance
$171,205
$129,355 No related comp$41,850
Jill Pollander
Vice President, Patient Services
$168,965
$139,242 No related comp$29,723

Benchmark Employee Compensation

Non-Employee Board Members

Dennis Jackman
Director
Frederick Barr, M.D.
Director
Jim Palma
Director
Kathleen Holcombe
Chair
Mike Porath
Director
Phillip Pearl, M.D.
Director
Ronald J Bartek
Director
Shafali Jeste, M.D.
Director
Steven Grossman
Secretary
Susan Berry, M.D.
Director
Susan Hedstrom
Director

Contractors

Future Dmz Future Limo
Patient
$322,249
Offscript Media LLC
Promotion/Advertising
$145,000
Zuckerman Spaeder LLP
Legal
$110,160
Dudley Digital Works
Audio/Video
$106,784

Mission Statement

NORD STRIVES TO IMPROVE THE HEALTH AND WELL-BEING OF PEOPLE WITH RARE DISEASES BY DRIVING ADVANCES IN CARE, RESEARCH, AND POLICY.

Revisions to this organization profile

June 9, 2025:
2024 National Organization for Rare Disorders Inc. 990 filed
May 31, 2024:
2023 National Organization for Rare Disorders Inc. 990 filed
May 11, 2023:
2022 National Organization for Rare Disorders Inc. 990 filed

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