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Organizations National Organization for Rare Disorders Inc.

National Organization for Rare Disorders Inc.

Fiscal year ending 2020. Filed on July 16, 2021.

1900 Crown Colony Dr 3rd Fl No
Quincy, Massachusetts 02169

National Organization for Rare Disorders Inc. (EIN: 13-3223946) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2020 IRS Form 990 filing, National Organization for Rare Disorders Inc., a 501(c)(3) charitable organization, reported compensation for 8 out of 99 total employees. Among the employees shown here, the average compensation is $266,533. The highest compensated employee at National Organization for Rare Disorders Inc. is Peter Saltonstall with fiscal year 2020 compensation of $528,714.

Revenue, expenses, and employee compensation

Revenue

$42,843,360

Expenses

$52,712,119

Employee compensation

$8,470,391
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Peter Saltonstall
President and Chief Executive Officer
$528,714
$505,828 No related comp$22,886
Pamela Gavin
Chief Operating Officer
$354,064
$329,943 No related comp$24,121
Alexa Moore
Vice President, Development
$254,522
$215,094 No related comp$39,428
Rachel Sher
Vice President Policy and Regulatory Affairs
$238,083
$225,539 No related comp$12,544
Prashant Goel
Vice President, Information Technology
$236,046
$225,269 No related comp$10,777
Tim Ehrhard
Information Technology Director
$198,285
$161,533 No related comp$36,752
Vincent J Murphy Jr
Vice President, Finance
$164,605
$129,386 No related comp$35,219
Jill Pollander
Patient Services Director
$157,948
$132,058 No related comp$25,890

Benchmark Employee Compensation

Non-Employee Board Members

Frederick Barr, M.D.
Director
Jim Palma
Director
Kathleen Holcombe
Director/Chair (AS of 12/9/2020)
Marshall L Summar, M.D.
Chair (Until 12/9/2020)
Mike Porath
Director
Neil Horikoshi
Director (Until 12/9/20)
Philip Pearl
Director
Ronald J Bartek
Director
Shafali Jeste
Director
Steven Grossman
Secretary
Susan Berry
Director
Susan Hedstrom
Director

Contractors

Future Dmz Future Limo
Patient
$385,140
Cline Davis & Mann LLC
IT Consultant
$230,773

Mission Statement

NORD STRIVES TO IMPROVE THE HEALTH AND WELL-BEING OF PEOPLE WITH RARE DISEASES BY DRIVING ADVANCES IN CARE, RESEARCH, AND POLICY.

Revisions to this organization profile

June 9, 2025:
2024 National Organization for Rare Disorders Inc. 990 filed
May 31, 2024:
2023 National Organization for Rare Disorders Inc. 990 filed
May 11, 2023:
2022 National Organization for Rare Disorders Inc. 990 filed

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