Rare
Fiscal year ending 2021. Filed on June 7, 2022.
1310 North Courthouse Rd No 110
Arlington, Virginia 22201
Rare (EIN: 23-7380563) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2021 IRS Form 990 filing, Rare, a 501(c)(3) charitable organization, reported compensation for 12 out of 105 total employees. Among the employees shown here, the average compensation is $278,795. The highest compensated employee at Rare is Brett Jenks with fiscal year 2021 compensation of $500,644.
Revenue, expenses, and employee compensation
Revenue
$37,625,413
Expenses
$28,280,886
Employee compensation
$17,442,050
Reported Compensated Employees
Brett Jenks
President and Chief Executive Officer
$500,644
$443,283 from orgNo related comp$57,361 other
Karen Ziffer
Chief Development Officer
$327,054
$272,097 from orgNo related comp$54,957 other
Dale Galvin
Former Managing Director (Until 9/20)
$322,082
$285,342 from orgNo related comp$36,740 other
Niels Crone
Chief Operating Officer
$315,067
$261,633 from orgNo related comp$53,434 other
Stephen Box
Managing Director
$274,679
$225,986 from orgNo related comp$48,693 other
Paula Caballero
Managing Director
$270,860
$241,207 from orgNo related comp$29,653 other
Caryn Perrelli
Vice President
$255,711
$209,448 from orgNo related comp$46,263 other
Brandon Schauer
Vice President
$230,944
$185,326 from orgNo related comp$45,618 other
Barbara Betts
Vice President
$224,656
$198,466 from orgNo related comp$26,190 other
Esteban Chavarria
Vice President
$217,731
$173,406 from orgNo related comp$44,325 other
Anna T Bartlett
Vice President
$214,241
$169,802 from orgNo related comp$44,439 other
Cynthia Mayoral
Vice President
$191,872
$148,757 from orgNo related comp$43,115 other
Mission Statement
RARE INSPIRES CHANGE SO PEOPLE AND NATURE THRIVE.
Other organizations also named Rare
Rare Cancer Research Foundation
Durham, North Carolina
Rare Disease Company Coalition Inc.
Washington, District of Columbia
Rare Ensemble Foundation Inc.
Rockville, Maryland
Rare Bird Foundation
Glenview, Illinois
Rare Access Action Project Inc
Washington, District of Columbia
Rare Crossroads Inc.
Glenwood, Maryland
Revisions to this organization profile
October 14, 2025:
Amended (originally filed August 12, 2025)2024 Rare 990 filed
August 13, 2024:
2023 Rare 990 filed
September 27, 2023:
2022 Rare 990 filed
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