Rare
Fiscal year ending 2022. Filed on September 27, 2023.
1310 North Courthouse Rd 110
Arlington, Virginia 22201
Rare (EIN: 23-7380563) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2022 IRS Form 990 filing, Rare, a 501(c)(3) charitable organization, reported compensation for 14 out of 93 total employees. Among the employees shown here, the average compensation is $273,605. The highest compensated employee at Rare is Brett Jenks with fiscal year 2022 compensation of $556,240.
Revenue, expenses, and employee compensation
Revenue
$25,340,932
Expenses
$31,019,368
Employee compensation
$18,569,543
Reported Compensated Employees
＋11.1%vs 2021
Brett Jenks
President and Chief Executive Officer
$556,240
$494,928 from orgNo related comp$61,312 other
＋11.5%vs 2021
Karen Ziffer
Chief Development Officer
$364,827
$309,096 from orgNo related comp$55,731 other
＋10.9%vs 2021
Niels Crone
Chief Operating Officer
$349,494
$296,590 from orgNo related comp$52,904 other
＋26.3%vs 2021
Brandon Schauer
Vice President
$291,580
$242,815 from orgNo related comp$48,765 other
＋11.5%vs 2021
Caryn Perrelli
Vice President
$285,029
$239,286 from orgNo related comp$45,743 other
New in 2022
Andrew Simpson
Vice President
$255,163
$212,450 from orgNo related comp$42,713 other
＋9.8%vs 2021
Barbara Betts
Vice President
$246,769
$221,830 from orgNo related comp$24,939 other
＋11.1%vs 2021
Esteban Chavarria
Vice President
$241,959
$195,633 from orgNo related comp$46,326 other
＋12.7%vs 2021
Anna T Bartlett
Vice President
$241,365
$196,002 from orgNo related comp$45,363 other
－16.5%vs 2021
Paula Caballero
Managing Director
$226,039
$200,899 from orgNo related comp$25,140 other
New in 2022
Renee Carstensen
Vice President
$220,489
$198,139 from orgNo related comp$22,350 other
New in 2022
Tracy Nugent
Senior Director
$213,800
$171,336 from orgNo related comp$42,464 other
Mission Statement
RARE INSPIRES CHANGE SO PEOPLE AND NATURE THRIVE.
Other organizations also named Rare
Rare Cancer Research Foundation
Durham, North Carolina
Rare Disease Company Coalition Inc.
Washington, District of Columbia
Rare Ensemble Foundation Inc.
Rockville, Maryland
Rare Bird Foundation
Glenview, Illinois
Rare Access Action Project Inc
Washington, District of Columbia
Rare Crossroads Inc.
Glenwood, Maryland
Revisions to this organization profile
October 14, 2025:
Amended (originally filed August 12, 2025)2024 Rare 990 filed
August 13, 2024:
2023 Rare 990 filed
September 27, 2023:
2022 Rare 990 filed
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