Rare
Fiscal year ending 2024. Filed on October 14, 2025.
1310 North Courthouse Rd 110
Arlington, Virginia 22201
Rare (EIN: 23-7380563) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, Rare, a 501(c)(3) charitable organization, reported compensation for 14 out of 125 total employees. Among the employees shown here, the average compensation is $333,370. The highest compensated employee at Rare is Brett Jenks with fiscal year 2024 compensation of $676,873.
Revenue, expenses, and employee compensation
Revenue
$33,556,901
Expenses
$37,155,372
Employee compensation
$23,036,900
Reported Compensated Employees
Brett Jenks
Chief Executive Officer
$676,873
$561,075 from orgNo related comp$115,798 other
Karen Ziffer
Former Chief DEV OFF (Thru 7/7/23)
$435,697
$389,366 from orgNo related comp$46,331 other
Caleb McClennen
President
$424,705
$396,888 from orgNo related comp$27,817 other
Niels Crone
Chief Operating Officer
$407,242
$327,954 from orgNo related comp$79,288 other
Anna T Bartlett
Vice President (Thru 6/30/24)
$333,931
$279,105 from orgNo related comp$54,826 other
Caryn Perrelli
Senior Vice President
$327,894
$279,452 from orgNo related comp$48,442 other
Brandon Schauer
Senior Vice President
$299,985
$270,115 from orgNo related comp$29,870 other
Andrew Simpson
Vice President
$275,521
$230,928 from orgNo related comp$44,593 other
Barbara Betts
Vice President
$270,752
$242,772 from orgNo related comp$27,980 other
Esteban Chavarria
Vice President
$262,585
$213,041 from orgNo related comp$49,544 other
Tracy Nugent
Vice President
$260,155
$220,275 from orgNo related comp$39,880 other
Renee Carstensen
Vice President
$259,842
$222,783 from orgNo related comp$37,059 other
Mission Statement
RARE INSPIRES CHANGE SO PEOPLE AND NATURE THRIVE.
Other organizations also named Rare
Rare Cancer Research Foundation
Durham, North Carolina
Rare Disease Company Coalition Inc.
Washington, District of Columbia
Rare Ensemble Foundation Inc.
Rockville, Maryland
Rare Bird Foundation
Glenview, Illinois
Rare Access Action Project Inc
Washington, District of Columbia
Rare Crossroads Inc.
Glenwood, Maryland
Revisions to this organization profile
October 14, 2025:
Amended (originally filed August 12, 2025)2024 Rare 990 filed
August 13, 2024:
2023 Rare 990 filed
September 27, 2023:
2022 Rare 990 filed
Get an email when new compensation information is released for Rare
Be the first to know when new IRS Form 990 data is published for this organization.